I went to the doctor the next day and she wrote a referral letter. 5 weeks later I hadn't heard anything back from the hospital so I followed up. The doctor wrote another referral and got the practice nurse to fax it through.
On Friday I followed up again, 12 weeks after first being referred, a different practice nurse figured out that the fax was sent upside down, i.e. the hospital received a blank piece of paper. I don't know what happened to the first referral perhaps it was not the first time the nurse made this mistake.
Aaargh.
Fortunately it is not something difficult to live with and a delay in investigating the cause is unlikely to make any difference to the outcome as the scenarios I know of are:
- the ataxia will never be explained, it is just a mysterious quirk,
- when I was born I received brain damage which was so minor that it has not been picked up until now (I was a difficult forceps delivery),
- Parkinson's disease,
- Multiple Sclerosis.
4 comments:
If it helps at all my uncle was diagnosed with advanced MS in 1973 and told he had 2 years to live. Last year he took gliding lessons and this year he spent four days trekking around Florence - my parents couldn't keep up with him.
And it is very scary - I hope the parts of the health system you need smarten up shortly and you get a diagnosis.
Scary waiting times really suck. Sorry to hear that you're going through that.
Let me know if I can do anything... I could try distracting you with coffee?
I am worried and hopeful for you.
*hugs*
I'm thinking many good thoughts for you.
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